The Epidermis Diaries

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Meet Jera. She is my beautiful, 3-going-on-17 year old daughter. Full of energy, sass, love, fishy kisses and the best Jera hugs. She is my side-kick in all things. Her favorite things are Barbies, PJ Masks, Taylor Swift, strawberry milk and the Fresh Beat Band. She is resilient and teaches me every day what living without fear looks like. She also suffers from eczema…and I don’t use the word suffer lightly. But more on that later.

Now I have to ask, could  this be what the cure for eczema looks like???

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We’ve been through a lot on this eczema journey, and after all we’ve tried, all the doctor appointments, steroids, creams, lotions, all of the money spent, could the answer really come down to some supplements and essential oils??? I’m feeling skeptical and if you’ve dealt with eczema, you’ll know why.

At 13 months old, Jera’s skin completely and radically changed. She went from clear, soft, gorgeous baby skin to being broken out with red, rough and bumpy rashes all over her body, most severely on her elbows, wrists, knees and ankles. Her skin has gotten so bad at times that she’s had to take antibiotics to combate infections that have entered in through her open wounds. Since that time, we’ve been through EVERY over-the-counter topical treatment. Aquaphor, Cetaphil, Eucerin, Gold Bond, oatmeal baths, Epsom salts… We’ve been through the pharmaceutical gammut as well. At one point we actually found a topical steroid that did wonders for her skin, only to find out it was no longer available when we went for the refill (it had been tied to Luekemia 😖).  Needless to say I had a serious moments pause about Jera’s eczema treatment right then and there.

This entire time, we’ve been following the advice of specialists. Her very own dermatologist and allergist and still no answers. During our tenure, their advice has gone from one extreme to another. Don’t bathe her. Bathe her every day. Remove all carpeting from your home. Wrap her in a wet blanket and make her sit for an hour…it’s a great cold compress for the skin. So…I did mention she’s THREE, right?! At her last dermatologist appointment, the doctor suggested I begin punishing her when I see her scratching. His latest hypothesis is that if she wouldn’t scratch herself, she wouldn’t have the rashes and sores on her body. When I said “But she scratches herself because she itches???”, he suggested I start giving her Benadryl 4 times a day. In his words, she may be a little “out of it” but she won’t be itchy. We, as patients, put our trust in our doctors. We have to. They are the experts and we, as patients, need their knowledge and advice. My mom, Jera’s grandma, was with us at this appointment. I was so thankful to have her there to validate that this doctor didn’t have Jera’s best interest at heart. He wasn’t invested in her healing. And so it was my sign that it was time to move on.

So here we are, nearly 3 years into this battle with Jera’s skin and she’s no better today then she was in the beginning. This is a picture of what her skin looked like this morning.

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Horrible, right?! I range from feeling desperate, to sad, to frustrated. At this point, I have realized we have to keep an open mind. There is an answer out there. Our prayers will be answered but I have to be listening, attentive and leave the doubt behind.

I decided that if something comes our way, we will try it. We will not accept that she just has to live this way. Live having other children point to her red, swollen patches of skin and ask her what’s “wrong with her”. Live not being able to sleep at night because she itches so badly that she can’t rest peacefully. Live putting one toxic ointment on her body after another to get some sort of relief without knowing what the long term effects will be. There must be a cure.

Enter Iridology. This is a science that evaluates the nerve endings in the iris to determine strengths, weakness, areas of congestion and stress, among other things inside the body. Several friends have shared their personal health success stories after visiting this particular Iridologist. So I took this as a sign and made an appointment. We had our appointment this week; the lady looked into my daughter’s eye and gave us her opinion. We left the store, and in hand, we have Recover Soothing Blend (oil), Silver Shield (gel), probiotics, Pau De Arco Extract, and Flax Oil.  She advised us to give her plenty of lemon water. We’re supposed to cut down the dairy and wheat intake. Increase dark leafy greens…beets would also be a good choice (yes, I’m looking at this lady like she’s an alien…my daughter is 3 and I’m not really sure about the beets!). Her thought is that my daughter’s kidneys need help. Her body is reacting to EVERYTHING like it is an allergy because he kidneys have been overworked trying to remove the toxins from her body. Her kidneys can’t keep up. I’m not a doctor, obviously. There was more to her explanation than that but that’s what I pulled from it. If we can clean up her kidney function, her skin will heal but it will take a few months to see results.

Could it be so simple? Some diet modifications, oils and supplements? I don’t know. But I’m thankful to have a new road to travel down. A new suggestion to try. It’s been a frustrating process, but we’re praying every day that we find relief. Realizing things could always be worse, we’re taking it a day at a time and pushing forward. If this isn’t the answer, we will have our ears open for the next opportunity to help our daughter. We won’t give up. Updates to come!

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nolucknecessary

Christian first. Wife second. Mom third. Friend, colleague, runner, music lover, style enthusiast, lover of life. Excited in all things...believer that this life is a great adventure.

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